CHARGE lab
​Children with CHARGE syndrome frequently engage in behavior that is challenging to those who work or live with them. The behavior is often described as obsessive compulsive, autistic-like, and stereotypical. The function of the lab is to investigate the genetic, biological, environmental and individual factors that may be implicated in the etiology of these behaviors, with the aim of better describing the behavior and developing appropriate strategies for intervention and prevention.
 
Projects currently under various stages of development include the following: the experience of siblings and fathers, communication systems being utilized and how they are chosen, decision making around the removal of gastrostomy feeding tubes, the prevalence of headaches, the development of play, and the use of an adapted version of Tai Chi as an intervention for children with CHARGE. An overarching focus of investigation is problems with self-regulation leading to behavioral challenges.
 
We welcome undergraduate and (potential) graduate students with an interest in our work to apply to assist in the lab​.
 
Please select options on this page to learn more about our group's research, members, publications and teaching.  Please also visit DB Central and the Joanna M. Russ Memorial
 
Thank you for taking interest in our lab! 
 
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CHARGE Lab faculty & students
 
Front Row, left to right: Kirsten Hissong, Tim Hartshorne, Ben Kennert, Tate Jenkins
Second Row, left to right: Rachel Malta, Shantell Johnson, Maria Ramirez, Megan Schmittel
  

 


   

Announcements

  • New facebook page
  • Updated website
  • Published first of the five self-regulation articles
    • Ramirez, M.A., Hartshorne, T.S., & Nicholas, J. (2014, January). Self-regulation in individuals with CHARGE syndrome. Dbl Review, 52, 43-47.
    • Two of the remaining four articles have been submitted
  • Article on CHARGE for SLPs accepted for publication
    • Hartshorne, T.S., & Hissong, K.N. (in press). CHARGE syndrome: An introduction for Speech-Language Pathologists. SIG 16 Perspectives on School Based Issues.
  • Seven posters at Student Research and Creative Endeavors Exhibition (SCREE)
    • Quality of Life-Benjamin Kennert
    • Play-Megan Schmittel
    • Removal of gastrostomy-Rachel Malta
    • Fathers in CHARGE-Johnson
    • CHARGE for SLP's-Kirsten Hissong
    • Headaches-Jenkins
    • Siblings-Haley Hoesch
  • Reserch Progress
    • Ramirez-thesis completed, dissertation nearly ready for prospectus
    • Kennert-beginning stages of dissertation on sleep in CHARGE
    • Schmittel-literature review nearly completed; ready to go to Germany for consultation
    • Malta-prospectus nearly ready
    • Johnson-article nearly drafted
    • Hissong-article accepted for publication
    • Jenkins-delayed in order to integrate with Foundation's database, but approved by research committee
  • Added two outstanding members to the lab
    • Haley Hoesch
    • Gretchen Imel
  • We had a good time to
 
Presentations:

Presentations a the Australasian CHARGE Conference in Auckland, New Zealand:

 Hartshorne, T. S. (2014). Mothers, and fathers, and siblings, oh my! Presented at Australasian CHARGE Syndrome Conference, Auckland, New Zealand.

Williams, G. L., & Hartshorne, T. S. (2014). Neural pathways and self-regulation. Presented at Australasian CHARGE Syndrome Conference, Auckland, New Zealand.

Hartshorne, T. S., Hoesch, H., Kennert, B., Malta, R., Ramirez, M., & Schmittel, M. (2014). CHARGE Lab: Behavioral strategies and interventions. Presented at Australasian CHARGE Syndrome Association Professionals Day, Auckland, New Zealand.​

Posters:

 

Ben Kennert:

  • Sleep Difficulties and CHARGE Syndrome: What is known and what is needed
  • Overview of Behavioral Sleep Interventions for Children with Developmental Disabilities

Rachel Malta:

  • Parental Decision Making in the Removal of Gastrostomy Tubes or Button

Megan Schmittel:

  • The Development of Play in CHARGE Syndrome

Hayley Hoesch:

  • The Experience of Siblings of Children with CHARGE Syndrome

Maria Ramirez:

  • The Use of an Adaptive Form of Tai Chi with Children with CHARGE Syndrome

 

Hartshorne, T. S., Brown, D., Ramirez, M. A. (2013). Self-regulation in CHARGE.  Presented at the 3rd International CHARGE Syndrome Professional Day, Scottsdale, AZ.

Hartshorne, T. S. (2013).  Behavior as self-regulatory adaptation.  Presented at 11th International CHARGE Syndrome Conference, Scottsdale, AZ.

Hartshorne, T. S. (2013). Resilient Parenting.  Presented at 11th International CHARGE Syndrome Conference, Scottsdale, AZ.

Hartshorne, T. S., Bieri, A., Davis, R., Dziesinski, H. L. (2013). The power of Jacob. Presented at 11th International CHARGE Syndrome Conference, Scottsdale, AZ.

Haney, S., & Hartshorne, T. S. (2013). Behavioral self-regulation in CHARGE. Presentedat 11th International CHARGE Syndrome Conference, Scottsdale, AZ.

Jenkins, O. T., & Hartshorne, T. S. (2013). Headaches in CHARGE. Presented at 11th International CHARGE Syndrome Conference, Scottsdale, AZ.

Johnson, S., Hartshorne, T. S., & Hissong, K. (2013).  Fathers in CHARGE syndrome: Work and friendships. Presented at 11th International CHARGE Syndrome Conference, Scottsdale, AZ.

Kennert, B., & Hartshorne, T. S. (2013). Cognitive self-regulation in CHARGE syndrome.  Presented at 11th International CHARGE Syndrome Conference, Scottsdale, AZ.

Kennert, B., Ramirez, M. A., & Hartshorne, T. S. (2013).  Self-regulation of emotion in CHARGE syndrome. Presented at 11th International CHARGE Syndrome Conference, Scottsdale, AZ.

Larson, A., & Hartshorne, T. S. (2013). Physiological self-regulation in CHARGE. Presented at 11th International CHARGE Syndrome Conference, Scottsdale, AZ.

Mork, S., Ramirez, M. A., & Hartshorne, T. S. (2013). Micro-enterprises – Building on strengths and promoting self-sufficiency: Factors to consider. Presented at 11th International CHARGE Syndrome Conference, Scottsdale, AZ.

Ramirrez, M. A., & Hartshorne, T. S. (2013).  Models of coneptualizinag self-regulation in CHARGE syndrome.  Presented at 11th International CHARGE Syndrome Conference, Scottsdale, AZ.