​Publications

Series of five self-regulation articles published in Dbl Review

  • Larsen, A. E., Hartshorne, T. S., Brown, D., & Nicholas, J. (2016). Physiological Self-Regulation in CHARGE Syndrom​e. DbI Review, 56, 26-31. 
  • Haney, S. D., Hartshorne, T. S., & Nicholas, J. (2015). Self-Regulation of Behavior in CHARGE Syndrome​. DbI Review, 55, 55-60.
  • Kennert, B., Ramirez, M., Hartshorne, T. S., Deuce, G., & Nicholas, J. (2015) Self-Regulation of Emotion in CHARGE Syndrome. DbI Review, 54, 26-30.
  • Kennert, B., Hartshorne, T. S., Wanka, A., Dix, H., & Nicholas, J. (2014). Self-Regulation of Cognition in CHARGE Syndrome​. DbI Review, 53, 14-18.
  • Ramirez, M.A., Hartshorne, T.S., & Nicholas, J. (2014, January). Self-regulation in individuals with CHARGE sy​ndrome​. Dbl Review, 52, 43-47.​

NCDB behavior training module

  • Hartshorne, T. S., Antaya, C. L., Brown, D., & Schmittel, M. (2015). Understanding behavior. In National Center on Deaf-Blindness, Open Hands Open Access Intervener Learning Modules. National Center on Deaf-Blindness.

Presentations

  • Hartshorne, T. S. (2016). Mutter, Vater und Geschwister, oh je!Die CHARGE-Familie. Presented at German CHARGE Syndrome Conference, Oberwesel, Germany. 
  • Hartshorne, T. S. (2016). Erwartungsvoll. Presented at German CHARGE Syndrome Conference, Oberwesel, Germany.
  • Hartshorne, T. S. (2016). CHARGE syndrome: Implications for learning and education. VI Forum Internacional Sobre Surdocegueria e Deficiencia Multipla Sensorial e II Encontro libero Latino Americano na Area da Surdocegurira e Deficiencia Multipla Sensorial, Sau Paulo, Brazil.
  • Hartshorne, T. S. (2015). Understanding behavior in CHARGE syndrome. 10th Annual Texas Chargers Retreat, Camp Allen, Texas.

​Nebraska Deaf-Blind Project

  • Tim Hartshorne presented a two-day training on behavior. ​

12th Biennial Australasian CHARGE Syndrome Conference

  • Lab members presented on various topics.


Presentations a the Australasian CHARGE Conference in Auckland, New Zealand:

 Hartshorne, T. S. (2014). Mothers, and fathers, and siblings, oh my! Presented at Australasian CHARGE Syndrome Conference, Auckland, New Zealand.

Williams, G. L., & Hartshorne, T. S. (2014). Neural pathways and self-regulation. Presented at Australasian CHARGE Syndrome Conference, Auckland, New Zealand.

Hartshorne, T. S., Hoesch, H., Kennert, B., Malta, R., Ramirez, M., & Schmittel, M. (2014). CHARGE Lab: Behavioral strategies and interventions. Presented at Australasian CHARGE Syndrome Association Professionals Day, Auckland, New Zealand.​

Hartshorne, T. S., Brown, D., Ramirez, M. A. (2013). Self-regulation in CHARGE.  Presented at the 3rd International CHARGE Syndrome Professional Day, Scottsdale, AZ.

Hartshorne, T. S. (2013).  Behavior as self-regulatory adaptation.  Presented at 11th International CHARGE Syndrome Conference, Scottsdale, AZ.

Hartshorne, T. S. (2013). Resilient Parenting.  Presented at 11th International CHARGE Syndrome Conference, Scottsdale, AZ.

Hartshorne, T. S., Bieri, A., Davis, R., Dziesinski, H. L. (2013). The power of Jacob. Presented at 11th International CHARGE Syndrome Conference, Scottsdale, AZ.

Haney, S., & Hartshorne, T. S. (2013). Behavioral self-regulation in CHARGE. Presentedat 11th International CHARGE Syndrome Conference, Scottsdale, AZ.

Jenkins, O. T., & Hartshorne, T. S. (2013). Headaches in CHARGE. Presented at 11th International CHARGE Syndrome Conference, Scottsdale, AZ.

Johnson, S., Hartshorne, T. S., & Hissong, K. (2013).  Fathers in CHARGE syndrome: Work and friendships. Presented at 11th International CHARGE Syndrome Conference, Scottsdale, AZ.

Kennert, B., & Hartshorne, T. S. (2013). Cognitive self-regulation in CHARGE syndrome.  Presented at 11th International CHARGE Syndrome Conference, Scottsdale, AZ.

Kennert, B., Ramirez, M. A., & Hartshorne, T. S. (2013).  Self-regulation of emotion in CHARGE syndrome. Presented at 11th International CHARGE Syndrome Conference, Scottsdale, AZ.

Larson, A., & Hartshorne, T. S. (2013). Physiological self-regulation in CHARGE. Presented at 11th International CHARGE Syndrome Conference, Scottsdale, AZ.

Mork, S., Ramirez, M. A., & Hartshorne, T. S. (2013). Micro-enterprises – Building on strengths and promoting self-sufficiency: Factors to consider. Presented at 11th International CHARGE Syndrome Conference, Scottsdale, AZ.

Ramirrez, M. A., & Hartshorne, T. S. (2013).  Models of conceptualizing self-regulation in CHARGE syndrome.  Presented at 11th International CHARGE Syndrome Conference, Scottsdale, AZ.​

Posters

Student Research and Creative Endeavors Exhibition (SCREE)
  • Stages of Play in CHARGE Syndrome- Megan Schmittel
  • Anxiety in CHARGE Syndrome- Shanti Madhaven
  • What Do I Have To Do today?: Calendar Systems and Sensory Impairment- Shanti Madhaven
  • Adaptive Skiing for Deafblindness- Gretchen Imel
German CHARGE conference
  • Stages of Play in CHARGE Syndrome- Megan Schmittel
  • Anxiety in CHARGE Syndrome- Shanti Madhaven
  • What Do I Have To Do today?: Calendar Systems and Sensory Impairment- Shanti Madhaven
12th Biennial Australasian CHARGE Syndrome Conference
  • Debora Ferreira – CHARGE Syndrome in Brazil
  • Marissa Humphrey – Speech Therapy with Nolan: A Case Study
  • Bree Kaufman – Degrees of Severity in CHARGE Syndrome
  • Ben Kennert – Sleep in CHARGE Syndrome
  • Gretchen Imel – Trends in and Barriers to Recreation Participation in CHARGE Syndrome
  • Rebecca Jokinen – The Sensory Base of Unusual Behaviors in Children with CHARGE
  • Shanti Madhavan – Anxiety in CHARGE Syndrome and What Do I Have to Do Today?:  Calendar Systems and Sensory Impairments
  • Shelby Muhn – Post Traumatic Growth in Parents of Children with CHARGE Syndrome
  • Megan Schmittel – Stages of play in CHARGE syndrome
  • Rachel Wilson – Psychotropic Medication Use and Abuse

Research Progress

  • Ramirez- dissertation prospectus defended, collecting participants
  • Kennert- dissertation prospectus defended, phase one complete, working on IRB for phase 2
  • Schmittel- working on dissertation prospectus
  • Malta- working on thesis defense
  • Kauffman- Developing ideas for dissertation 
  • Madhavan- developing thesis prospectus
  • Imel- honors thesis in progress

Lab Members

  • Rachel Wilson
  • Shelby Muhn
  • Anna Weatherly
  • Lily Slavin 

Other Events

  • Michigan CHARGE Family picnic- 11 CHARGE families from all over Michigan came to Island Park on July 10th to enjoy a potluck lunch and recreational activities for the children. These activities included the splash pad, arts and crafts, balloon volleyball, play structures, and a “cool down” blanket area. The CHARGE Lab members ran each station under the leadership of Gretchen Imel. 
  • Consultation with family of child with CHARGE